Patient and Public Advisory Group

About the Patient and Public Advisory Group

 

Since its founding in 2015, the GIFT-Surg Patient and Public Advisory Group (PPIAG) have met quarterly to discuss areas of research across the wider project and feed in patient views and perspectives to how we develop, design and disseminate research.

The group brings together patient representation from charities representing the five main application areas of the GIFT-Surg project. It has a consistent membership that have built up a supportive and open group together with a core research team and range of speakers from across the project. At each meeting, members discuss and shape research to be around the needs and reality of patients.

The group’s outputs have fed into the project at all stages, contributing to project design and scope, development of research frameworks and engineering outputs, through to how we present work in patient information and videos describing our research. The PPIAG is led by Professor Anna David, with support from an organising team made up of Dr Nada Mufti, Dr Brian Dromey, Dr Andrew Melbourne and Dan Taylor, Public Engagement and Patient Involvement Manager.

If you are interested in giving a presentation at one of the upcoming PPIAG meetings, please contact Nada Mufti.

Members include representatives from:

“Thank you for the chance to take part in such a fascinating project. I’ve learnt so much, met so many amazing people and felt our members’ needs and wishes were as important to you as they are to me.”

PPIAG Patient Representative

“It’s really great to be a part of a close-knit group which always reminds us to think of the bigger picture and centre our research around the patients to make our work well rounded and relatable.”

PPIAG Patient Representative

For babies born to too soon, too small, too sick

The congenital diaphragmatic hernia support charity

Spina bifida and Hydrocephalus information, networking and equality

Antenatal Results and Choices – the charity offering non-directive information and support through antenatal testing

Twins Trust - We support twins, triplets and more...

The charity supporting the parents of twins, triplets and more

Key Outputs

 

Since 2015, the group has been involved in the development of a wide range of outputs, formed through joint conversations..

These outputs included:

In 2019, we conducted a mid-point evaluation review with the Manchester NHS Public Programmes team, creating a report summarising major outputs, achievements and learning. These are currently being developed into an external document and research paper.

“Thank you for showing me what a PPIAG can achieve when people really throw themselves in, giving time and enthusiasm to create genuine impacts!”

PPIAG Patient Representative